Surviving Alzheimer’s Podcast:

Clarity, Courage, and Care

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  • The Ultimate Gift: Honoring Alzheimer's Clinical Trial Volunteers | New Podcast Episode

    The Ultimate Gift: Honoring Alzheimer's Clinical Trial Volunteers | New Podcast Episode

    This episode is a love letter to every person who has ever said "yes" to Alzheimer's research when outcomes were uncertain. Behind every breakthrough treatment stand volunteers whose courage makes medical advances possible.

    Episode highlights:

    ✓ Why clinical trial volunteers give "the ultimate gift"

    ✓ What participation actually requires (trust, time, risk, hope)

    ✓ My mother's 2019 decision to enroll in Leqembi trials

    ✓ Milestones her courage gave our family

    ✓ Why her gift extends to people she'll never meet

    ✓ How one person's sacrifice ripples across generations

    ✓ Concrete ways to honor and support clinical research

    The numbers that matter:

    • 1,795 Clarity AD participants made Leqembi possible

    • 1,736 TRAILBLAZER-ALZ 2 participants made Kisunla real

    • Thousands currently enrolling in trials for future treatments

    • One person's courage = changed trajectory for millions

    What clinical trial participation requires:

    → Trust in uncertain outcomes

    → Frequent MRIs and brain scans → Regular multi-hour infusions

    → Cognitive testing highlighting decline → ARIA risk acceptance

    → Months or years of commitment

    → Hope for others without guaranteed personal benefit

    This episode honors every volunteer—past, present, and future—who chose courage over fear.

    Timeline: 0:00 - Cold open: The ultimate gift 2:00 - Why this gift matters 4:00 - My mother's decision (2019) 8:30 - What her courage gave us 14:00 - The unnamed thousands 18:30 - Science behind the sacrifice 22:00 - Gratitude in the season of giving 26:00 - How we honor this gift 28:30 - Closing: You're not alone

    To every clinical trial volunteer: Thank you. Your gift is why we have hope. ❤️

    #AlzheimersClinicalTrials #Leqembi #Kisunla #MedicalResearch #ClinicalTrialVolunteers #AlzheimersBreakthrough #UltimateGift #AlzheimersPodcast

  • Who Will Be There When I Forget?   |  Surviving Alzheimer's Podcast

    Who Will Be There When I Forget? | Surviving Alzheimer's Podcast

    Who Will Be There When I Forget? Planning Alzheimer's Care Without Traditional Family

    Three in the morning. The question circles: Who will be there when I can no longer remember my own name?

    In this deeply vulnerable episode, Teri shares her most personal fear as someone who has spent six years as her mother's co-caregiver through Alzheimer's disease and clinical trials—while being single, childless, and facing the same genetic risk herself.

    Over 35% of Americans aged 45-64 have no children. That number is growing. Yet our entire care infrastructure assumes traditional family caregivers exist. What happens when they don't?

    In this episode, you'll discover:

    • The reality of planning for Alzheimer's care without children or a spouse

    • Why traditional assumptions about aging fail millions of Americans

    • Financial realities: $600K-$1.8M for long-term memory care

    • The caregiver shortage crisis and its impact on solo agers

    • Innovative care models: caregiver co-ops, intentional living communities, expanded professional options

    • Concrete legal and financial planning steps you can take today

    • Policy changes needed to support this growing population

    • Why there's still hope despite the fear

    Content Warning: This episode contains heavy emotional content about aging, progressive illness, caregiving, and end-of-life planning.

    Silence doesn't serve us. If you're carrying this fear—you're not alone.

    Resources mentioned:

    About the Host: Teri Youngdale is the founder of Memory Treatment Advisors and Alzheimer's Survivor. She has served as her mother's co-caregiver through six years of Alzheimer's disease, including participation in groundbreaking clinical trials like Leqembi. Teri helps families create personalized roadmaps for prevention, treatment options, and long-term care planning.

    Listen with clarity, courage, and care.

    Expert (Author Name):

    Teri J. Youngdale